Did you know that…Canada has a new rare disease strategy?  This is big!

After more than 2 years of extensive stakeholder engagement, including members of the Care4Rare Canada Consortium, the Canadian Organization for Rare Disorders (CORD, released Canada’s Rare Disease Strategy on May 25, 2015 in Ottawa.  The Strategy outlines five key goals to facilitate and better coordinate the efforts of governments and stakeholders so that all individuals with rare disorders across the country can enjoy the same timely, quality health and social care as patients with more common diseases.  

The five goals include:

  1. Improving early detection and prevention
  2. Providing timely, equitable and evidence-informed care
  3. Enhancing community support
  4. Providing sustainable access to promising therapies and,
  5. Promoting innovative research. 

CORD views the Strategy as a living document and welcomes any new ideas on how we can collectively make a difference to bring positive change to how we care for people with rare disorders in this country.

Click here to check it out!

Communication and Advocacy

RE: Direct-To-Consumer (DTC) genetic testing in this country

As the voice of Medical Genetics professionals in Canada, CCMG has written a letter, to the Honourable Rona Ambrose, P.C., M.P, Health Canada, to express our concerns with the lack of legislation pertaining to Direct-To-Consumer (DTC) genetic testing in Canada, and the risks this creates for Canadians and the Canadian healthcare system.

Click here to download a copy of the letter.

Guidelines and Recommendations

pic guidelines

There are two documents on the CCMG website that you may not have noticed. Please take a few moments to familiarize yourself with these documents.



CCMG National Office, Executive and Committee have been busy planning the 39th Annual Scientific Conference at the Westin in Ottawa, ON. Check the website for all of the conference details.  

Some of the best genetics research had its birth in a bevvy at the CCMG reception. Our experience suggests that reception bevvies (and conference breakout sessions) are great for extracting your colleagues’ solutions to some of your most vexing problems. Check out when these sessions are offered by visiting the programs page of the website.

Early CCMG registration savings end August 4. If you are looking to save money on your registration then you have two weeks left to do it! Don't delay and register today.


jiffyA “jiffy” is variously defined as the duration of one tick of the system clock on your computer, often one AC cycle time (1/60 second in the U.S. and Canada) or, if you are a physicist, the time required for light to travel one foot in a vacuum, which turns out to be close to one nanosecond.  We estimate that registering for the CCMG conference will take you no more than 18,000 jiffies, as we suspect that you are not a physicist.

Looking forward to seeing you in beautiful Ottawa Sept 10-12,

Gail Graham
President, CCMG

Save the Dates!

TeleGraf - Friday, September 17 at 11:00 AM ET - REGISTER

Leading Strand  - Friday, September 24 at 12:00 PM ET - REGISTER

ThermoFisher Sponsored Educational Series - Friday, October 1 at 12:00 PM ET - REGISTER